It has always amazed me to see the vast and beautiful stars on a clear night out in the country far from the city street lights. But even more amazing still were the few times in my life I was blessed to see a shooting star. Somehow that ever so brief yet brilliant light streaking across the night sky was even more special, even more treasured than all the other stars in the sky.
Ali was like that shooting star. Her life was so brief that sometimes it almost seems like it was only a delightful dream, one I woke up from way too fast. But like that brilliant star, Ali was different. She was special. She was treasured. Never to be forgotten.
What a precious, precious gift she was! Praise God for choosing to bless us with her for those brief but brilliant 27 months!
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Samaritan Ministries
Living with Trisomy 13
This is a great website where I have researched Trisomy 13 and been greatly encouraged! This link is to the original archived website.
Eva's Gift
This is a very exciting, up-and-starting organization meant to help alleviate financial pressures on families of special needs kids, so that they can spend more time just enjoying their children. The inspiration for the charity is a sweet little girl named Eva. She has trisomy 13 just like Ali did. Please take a look at their website. You can also find them on facebook (Eva's Gift). Please consider supporting them in this great cause!!!
The Oley Foundation
A great resource for tube feeding information!
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