Saturday, April 11, 2009

Settling In Saturday

Alegria is still very exhausted from the whole ordeal and is sleeping even more than usual. She has also been breathing harder since being revived. The pediatric intensivist doctor at Ft. Wayne began treating her with Albuterol while she was in the PICU and ordered another week of breathing treatments at home.

Since she is so exhausted, we have not begun working with the bottle again yet. It looks like we will go ahead with the surgically placed G-tube. As it has been described to us by everyone we have talked with (doctors, nurses, and parents), it appears to be the besy option for Ali. It is a one-time more invasive procedure and then it is much simpler and easier, whereas the NG tube she has now needs much more constant watching and care. Some days I have had to replace the tube numerous times in just one day which can be very iritating to her litttle throat I am sure. We are also hopeful that by just removing the tube from her throat may reduce how much she spits up. They did run some diagnostic tests yesterday (an upper GI and a swallow study) to see if she had any reflux or abnormalities in her digestive tract. The tests came back normal which is good news.

I'll try to update some more later.

Jill

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