His mercies are new every morning

It is of the LORD's mercies that we are not consumed, because his compassions fail not. They are new every morning: great is thy faithfulness. Lamentations 3:22-23

We have had a very restful night. Since Alegria is still being fed by IV only (i.e. she is VERY hungry) and also seemed possibly still uncomfortable from the surgery, we decided to keep her on frequent pain meds through the night. And she slept well with no real episodes, so we slept well. Very refreshing especially after a very busy and exhausting day with lots of testing and lots of information to process.

Yesterday we were informed by the pulmonologist that we should definitely wait to begin any of the reconstructive surgeries as by closing any of the open portions in her mouth could actually make breathing much more difficult for her. This actually in some ways a relief because Al and I had already agreed we wanted to wait as long as possible to start the surgeries in order to give her body more time to rest and grow stronger.

Last night we were trained on how to use the apnea monitor and suction machine at home. Today I think we may be retrained in CPR and how to use the ambu bag.

We also should speak with neurologist and get the results of the EEG and CAT scan. And we will also speak with surgeon to find out when we can try to begin feeding her again through the g-tube.

Mostly though it is just watching and waiting still. They expect to keep us here through the weekend.

Jill