We just met the Pulmonologist. Another very pleasant and down to earth doctor. Basically, after taking a detailed history of both incidents, he believes we are probably dealing with obstructive apnea, which means something is blocking the airway versus the brain forgetting to breath. He would like to run several more tests himself. Now also when we do go home Alegria will be going home with ALL the bells and whistles! We will have an apnea monitor, special care seat, special suction machine, and even an ambu bag to rescitate her if necessary.
We still will be meeting with a Neurologist (brain doctor) later after they run an EEG.
Also we repeated her ECHO and expect to hear back from her cardiologist soon.
Jill
Friday, April 17, 2009
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