Well we've had several good days and several not as good days this week. Ali spiked a high fever on Tuesday but it quickly broke after a round of Ibuprofen and cuddling with her daddy. Ali had a great day yesterday, but a rougher night. This morning she started out fairly uncomfortable. She woke with a low fever, cough, and her g-tube site is very irritated after some leakage during the night. After another dose of Ibuprofen this morning, she has settled down a bit. I am hoping the day will continue improving. I hate to see her uncomfortable, but thankfully she is still doing rather well with it all. I am praying that God would restore her to health soon!!!
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Samaritan Ministries
Living with Trisomy 13
This is a great website where I have researched Trisomy 13 and been greatly encouraged! This link is to the original archived website.
Eva's Gift
This is a very exciting, up-and-starting organization meant to help alleviate financial pressures on families of special needs kids, so that they can spend more time just enjoying their children. The inspiration for the charity is a sweet little girl named Eva. She has trisomy 13 just like Ali did. Please take a look at their website. You can also find them on facebook (Eva's Gift). Please consider supporting them in this great cause!!!
The Oley Foundation
A great resource for tube feeding information!
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