Finally figured it all out :-)
Wednesday, October 28, 2009
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Samaritan Ministries
Living with Trisomy 13
This is a great website where I have researched Trisomy 13 and been greatly encouraged! This link is to the original archived website.
Eva's Gift
This is a very exciting, up-and-starting organization meant to help alleviate financial pressures on families of special needs kids, so that they can spend more time just enjoying their children. The inspiration for the charity is a sweet little girl named Eva. She has trisomy 13 just like Ali did. Please take a look at their website. You can also find them on facebook (Eva's Gift). Please consider supporting them in this great cause!!!
The Oley Foundation
A great resource for tube feeding information!
That is soooooo cute. I remember how much I laughed and cried the first time I caught Arianna smiling on video. The kids they said would never smile, what do all the docs know anyway. She is a blessing and a joy.
ReplyDeleteI would love to meet Ali, and your family some day. perhaps SOFT conf next year.